#storiesthatmatter: Navigating an unexpected diagnosis


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  • May 09, 2019

Next from Stories That Matter: Lumere’s Joe D’Onofrio shares how an unexpected diagnosis led him to dedicate his life’s work to making the healthcare experience easier for other families and patients with similar journeys.

“When he was just five weeks old, our son, Austin, went into heart failure and was rushed to Lurie Children’s Hospital. After a normal pregnancy and a perfect first five weeks of life, we received a devastating diagnosis: Austin had dilated cardiomyopathy and wouldn’t make it home with the same heart he was born with. On June 1, 2015, Austin received a donor heart and was given a second chance at life.

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